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Our Vision

“Working together towards
a world without
Huntington’s Disease.”

Our Mission

“To strive for the best possible quality of life for people affected by Huntington’s Disease and their families and carers though support, advocacy and education.”

Our Aims

Support: Provide support and information to enable people with Huntington’s Disease and their families to understand and cope with their illness and symptoms, facilitate support networks, operate social/therapeutic weekly programs for Huntington’s sufferers

Advocacy: Lobby for ongoing funding to maintain or expand the provision of services to people with Huntington’s Disease and their families & carers, fight discrimination agaisnt people “at risk”.

Education: Increase community awareness of Huntington’s Disease, provide relevant information to Huntington’s Disease sufferers and their famililies, provide training sessions for carers, health professionals and residential facilities, promote the Association through community participation.

Social & Recreation Program

The Association conducts a weekly Social and Recreation program for members diagnosed with Huntington’s Disease. The program is held every Thursday with members transported from their place of residence to the venue by access taxi or with a staff member at no cost.

The program is recreation based with many stimulating activities undertaken including: bingo, ten pin bowling, memory games, Velcro darts, pool, carpet bowls, craft, beauty therapy, barbeques and luncheon outings, to name just a few!

Our staff are highly qualified – many have been working in the disability sector, specifically Huntington’s, for a long time. Members of our program take great pride in planning activities, outings and meals on a monthly basis, as well as assisting with the organisation and planning of Holidays twice yearly.

For further information on the S & R program please contact us in the office on (08) 8352 2202.

Program Venue:

The Glandore Community Centre. Clark St, Glandore

Operating times:

Thursdays, 9.30am – 3.00pm

Upcoming Outings:

5th June : Clients 40th Birthday celebrations, Margo’s Farm, Mt Torrens
(Including visit to Melbas Chocolate Factory)

Young Carers

Young Carers are children or teenagers who are fully or partly responsible for the care of a parent, or sibling, who has a chronic illness or disability. Most Young Carers live in sole parent homes and perform tasks including toileting and showering, changing catheters, overseeing medications, and other household tasks such as cooking and cleaning.

Being a Young Carer has many negative impacts including, restricted social lives, interrupted schooling, isolation, emotional and psychological strain and loss of childhood.

The Association Young Carers support network aims to provide these “at risk” children with a complete break from their responsibilities, and to offer some coping and networking skills, introduce them to other children in a similar situation, let them know they are not alone, forge friendships and, most importantly, have fun.

Our Young Carers group is made up of children from families affected by various disabilities (and not only Huntington’s), therefore giving them an insight into the fact that there are other children in similar situations to their own. This helps them not to focus exclusively on Huntington’s and their possible “at risk” status.

Young Carer Network activities:

• Annual Holiday/ Retreat
• Bi-Monthly outings – including:
  • Indoor rock climbing
  • Ten pin bowling
  • Sailing
  • Discos, Movies
  • Magic Show
  • Circus Quircus
  • Greenhills adventure park

If you would like further information on how to be involved in our Young Carers Network, please contact us in the office on (08) 8352 2202.