Australian Huntington’s Disease Association (SA & NT) Inc.
Working towards a world without Huntington’s Disease
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Our Vision
“Working together towards
a world without
Huntington’s Disease.”
Our Mission
“To strive for the best possible quality of life for people affected by Huntington’s Disease and their families and carers though support, advocacy and education.”
Our Aims
Support: Provide support and information to enable people with Huntington’s Disease and their families to understand and cope with their illness and symptoms, facilitate support networks, operate social/therapeutic weekly programs for Huntington’s sufferers
Advocacy: Lobby for ongoing funding to maintain or expand the provision of services to people with Huntington’s Disease and their families & carers, fight discrimination agaisnt people “at risk”.
Education: Increase community awareness of Huntington’s Disease, provide relevant information to Huntington’s Disease sufferers and their famililies, provide training sessions for carers, health professionals and residential facilities, promote the Association through community participation.
2010 October Newsletter
Our 2010 October Newsletter is now available for download online. It is in PDF format so you will require Adobe Acrobat to read it. If you need to download Acrobat Reader you can download that for free from the Adobe website, click here
Publications
So What Is Huntington’s Disease?
- A Physician’s Guide to the Management of Huntington Disease, 2nd Edition
by Adam Rosenblatt, MD, Neal G Ranen, MD, et al. - Understanding Behaviour in Huntington Disease by Jane S Paulsen, PhD.
- A Caregivers Handbook for Advanced Stage Huntington Disease Ed, by Jim Pollard, MA.
Australian Huntington’s Disease Fact Sheet List
AHDA can provide fact sheets on many important aspects of Huntington’s. Please refer below for our current list. Should you require any of these fact sheets, or answers to specific queries, you may contact our office between 9.30 – 4pm on 08 8352 2202, or email us at [email protected] with your postal address. Of course you are most welcome to call in personally to our office.
- General information about Huntington’s Disease
- Living with someone who has Huntington’s Disease
- Predictive testing for Huntington’s Disease
- Talking to children about Huntington’s Disease
- Huntington’s Disease in the family – a booklet for young children
- Information for teenagers about Huntington’s Disease
- Eating and swallowing difficulties
- Huntington’s Disease and diet
- The importance of dental care in Huntington’s Disease
- Challenging behaviour and Huntington’s Disease
- Communication and Huntington’s Disease
- Sex and sexuality and Huntington’s Disease
- Incontinence and Huntington’s Disease
- Driving and Huntington’s Disease
- Making a decision about Residential Care
- Lifestyle and Huntington’s Disease
